3rd Annual Purple Day Walk for Epilepsy
The Purple Day Walk, which will be on March 18, 2017, aims to increase community awareness of the one-in-four children and their families who live with a neurologic disorder. The goal is to create a truly memorable, fun and educational day that includes a walk, Brain Games and dancing to live music that will engage the public and leave the children with unforgettable memories.
This year, Purple Day is partnering with Guinness World Records to attempt a record for the largest seizure first aid training in the world! Your help is needed to spread the word to recruit people to attend the training. This historic training will educate that one out of ten people will have a seizure and give you the tools to know how to respond.
Schedule of Events for Saturday, March 18:
8:00 - 9:00 a.m. - Walk Registration & Brain Games -in Mall of America® Rotunda
9:00 - 9:30 a.m. - The Purple Day® Walk Led by Purple Day Founder Cassidy Megan
9:30 - 10:30 a.m. - Closing Ceremonies & Brain Games – Local & national advocacy groups will
offer a fun carnival for guests.
11:00 - 11:45 a.m. - Guinness World Record Attempt: World’s Largest Seizure First Aid Training
In 2008, nine-year-old Cassidy Megan of Nova Scotia, Canada created the idea of Purple Day. Motivated by her own struggles with epilepsy, Cassidy’s goal is to get people talking about the disorder in an effort to dispel myths and inform those with seizures that they are not alone. She named the day Purple Day after the internationally recognized color for epilepsy, lavender. Now, on March 26th people from around the globe are asked to wear purple and spread the word about epilepsy. Purple Day has become the largest global epilepsy awareness initiative, now celebrated in over 120 countries and in every state in the U.S.
Form a team and walk with us!!!
For more event information you can visit http://purpledayeveryday.org/events/moawalk
Seize the Evening 2017
EPAEG’s 5th Fundraising Event Set for September 16, 2017
Seize the Evening Reception and Silent Auction, the Epilepsy Advocacy and Employment Group’s annual fundraising event will be held on Saturday, September 16 from 6:30 to 10:00 p.m. at the Bakken Museum, 3537 Zenith Avenue South (corner of West Calhoun Parkway and 35th Street) in Minneapolis. This is the fourth year the event has been at the Bakken. The Silent Auction starts at 6:30 p.m. and ends at 9:30 p.m. along with the drawing for the “Wall of Wine”. The proceeds from the event will go to support EPAEG’s programs to help people with epilepsy with employment issues.
Joanne Rogin, M.D., an epileptologist with the Midwest Center for Seizure Disorders, Minneapolis Clinic of Neurology will start the program with a Welcome and a short agency update and Thaddeus Walczak, M.D., an epileptologist with the University of Minnesota Physicians, MINCEP Through University of Minnesota Health and Chair of the Epilepsy Advocacy and Employment Group’s Professional Advisory Board will present a short medical update entitled “Advances in Epilepsy Treatment.”
In 2016 the event was moved to the main floor of the Bakken where was more space for the silent auction, food, entertainment and seating. The event will be in the same area this year. The Bakken Museum and its gardens will be open and operating for guests of EPAEG during the event.
Tickets for the reception are $35.00 and the agency is offering display tables to clinics and pharmaceutical companies. Seize the Evening is a wine and cheese reception however non-alcoholic options are also available along with traditional snacks. Dress is business or party casual. Parking is available in both the Bakken’s lot and on the street at no cost. The agency requests that tickets be reserved and paid in advance by credit card on line or at the event by check or cash only. Tickets can be ordered by going to the EPAEG website before September 9 at www.epaeg.org or by calling 612-616-4612.
Introducing EPAEG’s New Case Manager
In February, the Epilepsy Advocacy and Employment Group brought a new Case Manager on board in order to assure top-of-the-line employment assistance for our clients with epilepsy. We’re introducing Jonathan Hoffman to the agencies, clinics and clients we work with and serve.
Jon received his Bachelor’s degree at the University of Minnesota and shortly thereafter began his career in Employment and Training as a case aide with the Career Guidance and Training Center in St. Paul. Since then he has worked as a Vocational and Career Counselor, Placement Specialist, and Job Search Trainer in both the public and private sectors. Jon has served people with disabilities, outplaced workers, people on government employment programs, youth, and the general public. His entire career has been in the employment field and we want to welcome Jon to the Epilepsy Advocacy and Employment Group where he will be a much valued team member.
EPAEG BOARD OF DIRECTORS MEMBER LORETTA BOILEAU TALKS ABOUT THE EPILEPSY ADVOCACY AND EMPLOYMENT GROUP
Epilepsy Advocacy and Employment Group (EPAEG) helps people with epilepsy and seizure disorders by providing an employment program which offers employment support groups, job seeking skills workshops, interviewing skills training, resume and cover letter coaching and helping individuals with epilepsy access to job search databases. It also works with employers to resolve issues related to epilepsy and coordinates with other agencies to provide appropriate education to companies and employers of people with seizure disorders to encourage employment.
EPAEG also assists people with seizure disorders as an individual advocate when discrimination may be an issue, or when a person with seizures needs help or assistance with employment specific issues such as access to health insurance, public and private disability benefits, drivers’ licensing and transportation resources related to accessing employment.
Epilepsy Advocacy and Employment Group provides several professionally conducted, time-limited, education groups which are designed to help individuals with seizure disorders better understand the impact epilepsy has on becoming successfully employed.
When a situation becomes complex and you need special help to resolve it, that’s when you need a case manager or Individual Advocate. Individual Advocacy goes a step beyond referral to other agencies and often involves working directly with legal, governmental, medical and other resources to solve your problem.
Epilepsy Advocacy and Employment Group will act on your behalf as a BRIDGE TO EMPLOYMENT and help you deal with the issues people with epilepsy often face which, along with seizures, lead to employment problems. EPAEG’s individual Advocates are highly experienced with the issues of transportation, memory and cognitive difficulties, brain injury, side-effects of medications, discrimination based on disability, special accommodations, teaching self-advocacy and other issues relative to epilepsy and employment.
Support EPAEG On-Line . . . Donate Now!
The Epilepsy Advocacy and Employment Group helps people with epilepsy who are seeking employment and related advocacy issues requiring case management assistance. We count on the people who believe in our mission to ensure that we can provide these services to the individuals who so desperately need them. We are not supported by the United Ways nor do we have a business which generates funds to support our work. We are deeply grateful for the generosity of the people who donate to support the Epilepsy Advocacy and Employment Group.
Your gift will help the Epilepsy Advocacy and Employment Group continue its important mission of providing employment assistance for people in Minnesota living with epilepsy. You can make a donation to EPAEG on-line now by clicking the DONATE NOW button. We thank you for your support.
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