EPAEG’s 4th Fundraising Event Set for September 17, 2016
Seize the Evening Reception and Silent Auction, the Epilepsy Advocacy and Employment Group’s annual fundraising event will be held on Saturday, September 17 from 6:30 to 10:00 p.m. at the Bakken Museum, 3537 Zenith Avenue South (corner of West Calhoun Parkway and 35th Street) in Minneapolis. The Silent Auction starts at 6:30 p.m. and ends at 9:30 p.m. along with the drawing for the “Wall of Wine”. The proceeds from this event will go to support EPAEG’s programs to help people with epilepsy with employment issues. Joanne Rogin, M.D., an epileptologist with the Midwest Center for Seizure Disorders, Minneapolis Clinic of Neurology will start the program with a Welcome and a short agency update and Thaddeus Walczak, M.D., an epileptologist with the University of Minnesota Physicians, MINCEP Through University of Minnesota Health and Chair of the Epilepsy Advocacy and Employment Group’s Professional Advisory Board will present a short medical update entitled “Advances in Epilepsy Treatment.”
Due to the increasing popularity of Seize the Evening we have moved the event to the main floor of the Bakken Museum where seating is provided and the silent auction will be in the same room as the food and entertainment. At 8:00 p.m. guest speaker Stacia Kalinoski, an Emmy-Award winning journalist will present her personal story entitled “My Greatest Marathon” and guest speaker Patrick Brown, M.D. of the Minnesota Epilepsy Group, P.A. will present his story “Confessions of an Epilepsy Double Agent . . . Life on Both Sides of the Neurology Bag.” The Bakken Museum and its gardens will be open and operating for guests of EPAEG during the event.
Tickets for the reception are $35.00 and the agency is offering display tables to clinics and pharmaceutical companies. Seize the Evening is a wine and cheese reception but non-alcoholic options are served along with traditional snacks. Dress is business or party casual. Parking is available in both the Bakken’s lot and on the street at no cost. The agency requests that tickets be reserved and paid in advance by credit card on line or at the event by check or cash only. Tickets can be ordered by going to the EPAEG website before September 10 at www.epaeg.org or by calling 612-616-4612.
Public Television to Air Documentary by EPAEG Board Member
In November, 2016 Twin Cities Public Television will air a fascinating documentary about epilepsy, “Brainstorm” which has been put together by Epilepsy Advocacy and Employment Group Board of Directors member Stacia Kalinoski. Stacia is an Emmy-award winning journalist and wants to share her story. It is being aired in “Epilepsy Awareness” month, November.
Stacia is committed to educating others about epilepsy and fighting the stigma that still exists. In this documentary she interviews former University of Minnesota Coach Jerry Kill who is also very much an advocate in our epilepsy community. Stacia is a featured speaker at EPAEG’s Seize the Evening wine and cheese reception and silent auction on Saturday, September 17 which is an event to support EPAEG and champion the lives of those living with epilepsy.
STACIA KALINOSKI BIOGRAPHY
I’m Stacia, a lifelong athlete and Emmy award-winning video journalist.
My journalism career started at the University of Minnesota, where I also ran competitive track and cross-country for the Gophers.
TV news took me to local news stations in Nebraska, Oregon and Michigan, where I shot, reported, and edited my own stories. Memorable interviews include Jamie Lee Curtis, Nike’s creative director, and countless others who have inspired me along the way.
Seizures didn’t strike until my sophomore year in college. Then just like that, they disappeared, only to gradually start resurfacing years later. I was finally diagnosed with epilepsy at age 27.
Epilepsy would later change my career trajectory in a major way.
As a journalist, documenting this experience was a natural decision.
The idea to create a documentary came to me in my doctor’s office after receiving the news that I was a candidate for brain surgery.
My goal is to educate this country about all kinds of seizures to help reduce the stigma associated with epilepsy. I have been fortunate to interview and learn from others experiencing this disorder, including former Minnesota Gophers football coach Jerry Kill.
My documentary, “Brainstorm,” will be available in November 2016.
EPAEG BOARD OF DIRECTORS MEMBER LORETTA BOILEAU TALKS ABOUT THE EPILEPSY ADVOCACY AND EMPLOYMENT GROUP
Epilepsy Advocacy and Employment Group (EPAEG) helps people with epilepsy and seizure disorders by providing an employment program which offers employment support groups, job seeking skills workshops, interviewing skills training, resume and cover letter coaching and helping individuals with epilepsy access to job search databases. It also works with employers to resolve issues related to epilepsy and coordinates with other agencies to provide appropriate education to companies and employers of people with seizure disorders to encourage employment.
EPAEG also assists people with seizure disorders as an individual advocate when discrimination may be an issue, or when a person with seizures needs help or assistance with employment specific issues such as access to health insurance, public and private disability benefits, drivers’ licensing and transportation resources related to accessing employment.
Epilepsy Advocacy and Employment Group provides several professionally conducted, time-limited, education groups which are designed to help individuals with seizure disorders better understand the impact epilepsy has on becoming successfully employed.
When a situation becomes complex and you need special help to resolve it, that’s when you need a case manager or Individual Advocate. Individual Advocacy goes a step beyond referral to other agencies and often involves working directly with legal, governmental, medical and other resources to solve your problem.
Epilepsy Advocacy and Employment Group will act on your behalf as a BRIDGE TO EMPLOYMENT and help you deal with the issues people with epilepsy often face which, along with seizures, lead to employment problems. EPAEG’s individual Advocates are highly experienced with the issues of transportation, memory and cognitive difficulties, brain injury, side-effects of medications, discrimination based on disability, special accommodations, teaching self-advocacy and other issues relative to epilepsy and employment.
Support EPAEG On-Line . . . Donate Now!
The Epilepsy Advocacy and Employment Group helps people with epilepsy who are seeking employment and related advocacy issues requiring case management assistance. We count on the people who believe in our mission to ensure that we can provide these services to the individuals who so desperately need them. We are not supported by the United Ways nor do we have a business which generates funds to support our work. We are deeply grateful for the generosity of the people who donate to support the Epilepsy Advocacy and Employment Group.
Your gift will help the Epilepsy Advocacy and Employment Group continue its important mission of providing employment assistance for people in Minnesota living with epilepsy. You can make a donation to EPAEG on-line now by clicking the DONATE NOW button. We thank you for your support.
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